Hello darlings!
I've been in SL a long time now and throughout the years I've seen a LOT of charity events. I've donated my time and my money when I have some to give.
In RL my family has mad many reasons to participatye in charity events. We've donated our time, we've created groups, raised money and even started a few charity's of our own. When my nephew passed away my sister and her husband worked closely with the American Heart and Lung assosication in their sons name My Aunt, while Mayor of her town created the first Walk for Multiple Sclerosis in her area in honor of my mother and her sister..The list goes on as I'm sure you get by now..
My question is this for those of you who are in the "know" I've seen events for various cancers, brain tumors, Alzheimer, depression.. etc etc. Does anyone know if there are any events out there for MS? This is something I've felt strongly about my entirely life and I was really saddened to see exactly 10 items under search for MS... most of which were personal groups..
Do any of you have ties to MS? Or I guess does anyone now of folks looking and willing to consider a new charity? If yo look back in my previous posts this is something I'm extremely linked to and it's something I feel gets little to no attention in a world where folks are almost ALWAYS willing to support a charitable event.
I guess I'm curious on anyone's thoughts for holding something. I'm not very "known" in SL I pretty much stick to myself unless I'm helping someone else by donating my time or a creation. I'd be very interested in learning a bit more from those who have held or helped with these larger events. Especially those who would be willing to offer time, support or sponsorships.
In the past 2.5 years since mymom passes away from complications with mS and my unt has been confined to a nursing home I began to shun the MS world a bit. I've recently begun to perk up towards raising awareness and as I've mentioned I'm even particip[ating in a survey. So... I feel it's time to show a little something for a disease that's often overlooked but more often effects someone we know and love..
Is anyone interested out there?
Enough downer-mode for now!
Until next time!! XOXO
National MS Society
Showing posts with label multiple sclerosis research. Show all posts
Showing posts with label multiple sclerosis research. Show all posts
Friday, April 13, 2012
Thursday, January 26, 2012
Getting Deep with Khloe
Hey lovelies,
Today's post is a bit different from my normal. It doesn't include pictures, or ranting or fashion but it IS important. At least to me. I'm going to get a bit personal so if that isn't your cup of team you can pretty much stop reading now.
I wanted to start of with a little background on myself. I am a first degree reletive of someone with Multiple Sclerosis. My mother had MS, my mother's youngest sister has MS, though a completely different form. My father's cousin has MS. My best friends mother had MS... Are you sensing a pattern in my life? You should. For a good portion of my life I was surrounded by people that have a horrible, noncontagious disease. Each person I have ever encountered with MS has had a slightly different form. Because MS effect so many people in so many different ways. For my mother her MS attacked her brain. She went from the Vice President of a major bank, to sometimes forgetting who I was. For the last 5 years of her life I was her primary care giver. I saw first hand how someone so alive and vital could wither into a shell of their former self. My Aunt's MS is completely physical. In her early 20's she went from a quirky, hyper woman to someone who has no control over any part of her body. At an age well below senior status she is now confined to a bed in a nursing home. On the flip side there are people who show almost no symptoms. Sometimes they can live an almost normal live and have very little episodes. I've seen a young woman hassled and accused of being a drunk because her legs suddely stop working correctly. I've heard people laugh when someone with MS tries to say a simple phrase and the word in their head isn't the word that comes out of their mouth. At the same time I've also been whitness to ignorant doctors telling people that MS is all in their head. It's a cruel disease.
Understanding this you can see why when I have trouble coming up with a word. Or when I do something odd I always hear that whisper in the back of my mind. "What if..." There no real way to say why some people get this disease. It's been linked enviormentally, genetically and just about anyway you can think. So when I happened upon a post in SL for an ongoing study you can imagine my surprise..
Today's post is a bit different from my normal. It doesn't include pictures, or ranting or fashion but it IS important. At least to me. I'm going to get a bit personal so if that isn't your cup of team you can pretty much stop reading now.
I wanted to start of with a little background on myself. I am a first degree reletive of someone with Multiple Sclerosis. My mother had MS, my mother's youngest sister has MS, though a completely different form. My father's cousin has MS. My best friends mother had MS... Are you sensing a pattern in my life? You should. For a good portion of my life I was surrounded by people that have a horrible, noncontagious disease. Each person I have ever encountered with MS has had a slightly different form. Because MS effect so many people in so many different ways. For my mother her MS attacked her brain. She went from the Vice President of a major bank, to sometimes forgetting who I was. For the last 5 years of her life I was her primary care giver. I saw first hand how someone so alive and vital could wither into a shell of their former self. My Aunt's MS is completely physical. In her early 20's she went from a quirky, hyper woman to someone who has no control over any part of her body. At an age well below senior status she is now confined to a bed in a nursing home. On the flip side there are people who show almost no symptoms. Sometimes they can live an almost normal live and have very little episodes. I've seen a young woman hassled and accused of being a drunk because her legs suddely stop working correctly. I've heard people laugh when someone with MS tries to say a simple phrase and the word in their head isn't the word that comes out of their mouth. At the same time I've also been whitness to ignorant doctors telling people that MS is all in their head. It's a cruel disease.
Understanding this you can see why when I have trouble coming up with a word. Or when I do something odd I always hear that whisper in the back of my mind. "What if..." There no real way to say why some people get this disease. It's been linked enviormentally, genetically and just about anyway you can think. So when I happened upon a post in SL for an ongoing study you can imagine my surprise..
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